Paddleboard, World FSHD Day & Orange Selfies!
FSHD, known as Facioscapulohumeral muscular dystrophy, is overlooked even though it is one of the most prevalent forms of muscular dystrophy. Today, participants from around the globe work to raise awareness of this disease, fighting to find a cure! I had the pleasure of meeting with my dear friend Katie last week, who suffers from FSHD, and I was so excited to hear that there are treatments that have been successful in mice- that is such encouraging news! The researchers and Dr.’s are working tirelessly to get their treatments out to patients who suffer from FSH, but that takes a lot of time and money. Please, if you have not, look into this cause and support it- every penny counts!
If you’re in the Denver area consider coming out to show your support! 2nd Annual Paddleboard & Kayak Fun with “Orange Slice Selfies” to celebrate World FSHD Day, June 20th! Personal boards & kayaks are allowed. Boards & kayaks are available to rent but are limited so if interested book now! Bring your lunch & kids. FYI, Groupon for 2 hour paddleboard or kayak for $19! Rent your boards from this link – pick Cherry Creek! And don’t forget to check Groupon first! http://rockymtnpaddleboard.com